Comments for Lupus Pain Relief.com

Comment on What Is The Difference Between Lupus Affecting The Nervous System And Ms? by vince123

vince123 — Sun, 28 Feb 2010 14:41:06 +0000

It’s more complicated but to make it simple, Lupus can affect multiple organ systems in the body (systemic systems), MS mainly affect the nervious and muscle system.

Comment on What Is The Difference Between Lupus Affecting The Nervous System And Ms? by Linda R

Linda R — Sun, 28 Feb 2010 08:48:24 +0000

Both lupus and multiple sclerosis are autoimmune disease in which the immune system goes haywire and attacks healthy parts of the self.
In multiple sclerosis, the immune system destroys the myelin sheath or fatty covering of the nerves. This can result in loss of transmission of signals.
In lupus, neurological symptoms can include things like seizures and neuropathy, or nerve pain. The mechanism by which lupus causes these things is not the same as in MS.

Comment on What Are The Odds Of A Child Getting Lupus If A Parent Has It? by christib…

christib… — Sat, 27 Feb 2010 12:30:24 +0000

Lupus is not inherited. There is research that shows there is a genetic predisposition to lupus that is hereditary. Some new research came out just this week, but it is not definitive yet.
From what I have read, chances are around 5% if the mother has lupus. A woman with lupus who is pregnant should see an obstetrician who specializes in high risk pregnancies and works closely with her rheumatologist. Lupus pregnancies can result in premature births.
Some babies born to lupus mothers will have neonatal lupus which usually disappears in six months or so. A very, very few babies will have congenital heart block.
Most of the people in my support group, including me, have non-lupus children.

Comment on What Are The Odds Of A Child Getting Lupus If A Parent Has It? by aWellWis

aWellWis — Sat, 27 Feb 2010 11:38:31 +0000

There is no known gene or genes which are thought to cause the illness. There are recent discoveries of a gene on chromosome 1 which is associated with lupus in certain families. Previously, genes on chromosome 6 called “immune response genes” were also associated with the disease. Only 10 percent of lupus patients will have a close relative (parent or sibling) who already has or may develop lupus. Statistics show that only about five percent of the children born to individuals with lupus will develop the illness.
This site will give you good info-http://www.lupus.org/webmodules/webartic…
You may ask questions there too.
Good luck!

Comment on Lupus Question by skinny lilly

skinny lilly — Sat, 27 Feb 2010 06:10:28 +0000

depends on the kind she has and how bad it is..
I have SLE (systemic Lupus) I was told in 84.
I’m still here…do fine, no meds…(I’m 52 now).
She can do well, way into her 70’s-80’s if she does away with stress, stays out of the sun, takes her meds (if she needs to) and takes care of her health…
Don’t be scared…trust me..it will be Ok…
she’ll need to see an Internal Meds Dr or a Rheumatologist (if she has rheumatoid arthritis). There are a LOT of new meds out now to help…and if she takes care of herself, she’ll live a long time…

Comment on Lupus Question by Juan

Juan — Sat, 27 Feb 2010 02:38:15 +0000

lupus is a serious condition. life expectancy depends on the type of lupus you have, as one type affects your skin and the other affects the soft tissues of your body. my aunt and 2 of her kids have the type that affects your skin, and they are living just fine. my mother has the lupus that affects soft body tissue, and this includes organs. she’s had lupus for about 10 years, and is still alive and working and leading a fairly normal life. never ask if a disease or disorder will “kill” you, ask what measures you can take to make life easier with the problem. a disease may weaken your defenses, but if you have something terminal or long lasting, never go out without a fight

Comment on Lupus Question by lisa_234…

lisa_234… — Fri, 26 Feb 2010 20:00:53 +0000

I have probable Lupus, but my mother’s cousin has Lupus and is in her 80’s
Lupus is usually diagnosed by symptoms as the ANA is not a sure indicator. I have Lupus Anticoagulant, which is not Lupus, nor an anticoagulant. Only some Lupus patients have this. It is Antiphospholipid Syndrome and causes clotting.
I hear your concern for your mom. Best wishes

Comment on Lupus Question by withyou@…

withyou@… — Fri, 26 Feb 2010 17:17:09 +0000

Well I can say from personal experience, being as my boyfriend, his sister & his brother all have it you can live a VERY long time w lupus…it is an auto immune disease & there are a few different types you can have ……here is the national lupus foundation web site, go here they should be able to help you…….http://www.lupus.org/newsite/index.html
Also, dont worry too much w proper medication & a little diet change you can live a happy healthy life w lupus & you dont have to worry about losing you Mom anytime soon??

Comment on Lupus Question by withyou@…

withyou@… — Fri, 26 Feb 2010 12:56:58 +0000

Lupus has no set course . Lupus patients cross each other thru the years with the same ailments.
Lupus is an autoimmune disease that produces SO many antiboties that it atctally attacks and kills health cells and joints.
I was told in 1985 I had 6 months to live. however, I have had many operations brought on by the effects of lupus.
Oh the other hand there are people who have either gone so long with diagnoses or just don’t want to admit they have it and battle for their lives.
There have been know deaths with 30 days of diagnosis — however, somehow I believe that is fright of the unknown not the disease itself.
With there being Systemic (innter body all locations) and Discoid — skin — Lupus can attack anywhere. I do not consider a Lupus patient a patient but a victim.
My prayers will be with you daily, your family.

Comment on Lupus Question by christib

christib — Fri, 26 Feb 2010 09:54:51 +0000

Hi, Im Chris. I have Lupus and have had it probablly since I was in my early teens. I’m now almost 40. I also own a support group for people with autoimmune diseases. Well, Lupus can do and attack almost any organ. However, there are various degrees. The prognosis is much better today then even 10 years ago. It can come on quickly and diminish with time, or a person may have it hit slow, with periods of remmison. It does effect skin but there are two types of lupus SLE (which is systemic, meaning whole body) or Discoid (meaning just skin). I have had many “Flares”, some very serious, and some mild ones. Part of living well with Lupus is a persons fight and attitude. There is no reason, with proper medical care that your mother can’t lead a full life. There are more Family support and outside support are also paramount. As a person who lives with, as well as the researcher for the group I own, with other memebers, my knowledge base has grown. As well as a very good Rhuemotologist, that is important, and going to appoitments with a specilaist is paramount in catching any organ threatning, or even milder cases of lupus quickly. Several in our group still continue working, some not. So until you find out for sure, worry and stress will only make you and your mom feel worse. I also know from personal experience, when I don’t eat fast food, I recover quicker, and have longer periods of remmison, as well as I just feel better. Along with blood work, a butterfly rash your mother must meet a minimum of 4 of 11 critera for a possible or probable diagnosis.
Thank You,
Chris B