Also, my doctor said he thinks my problems could by autoimmune like lupus because I show so many symptoms that match that and only predisone helps my symptoms, but my autoimmune test came back good, does anyone have any suggestions on what avenues to take to figure this out and how to get a diagnosis?

Answer
There are four different types of lupus: one that affects skin, one that affects the body, one that happens to newborns, one that is caused by certain medications. Not everyone get the rash. I never had the rash but the lupus affected my organs.

5% of people with systemic lupus (that affects the body) will have a negative anti-nuclear antibody test. This is documented in the medical text book “Systemic Lupus Erythematosus” by Dubois, and in “The Lupus Book” by Daniel Wallace MD.

Lupus is difficult to diagnose because there is no specific test. You need to see a rheumatologist. Most general doctors do not have the training to make an accurate diagnosis.